Rare Diseases

National Cancer Survivors Day

National Cancer Survivors Day

It’s National Cancer Survivors Day this Sunday, June 5th and we’re highlighting the important role cord blood and stem cells have played in helping increasing numbers of people survive cancer. Cancer comes in many forms and in days gone by a cancer diagnosis was almost certainly terminal. Thankfully, medicine has advanced and today there are(…)

Krabbe Disease: Twins Find Cord Blood Match

Krabbe Disease: Twins Find Cord Blood Match

Leicestershire twins Luis and Kian King have found a stem cell match. Juvenile-onset Krabbe Disease The boys from Sileby were diagnosed with the rare condition Juvenile-onset Krabbe Disease which causes loss of motor skills and severely shortens life expectancy.  In Krabbe Disease the body is missing an important enzyme which breaks down certain types of fat-based(…)

Scleroderma: In The Spotlight

Scleroderma: In The Spotlight

February is Raynaud’s and Scleroderma Awareness Month.  This week we’re asking “what is scleroderma?” and “can stem cells help?” Raynaud’s and Scleroderma Raynaud’s is a condition which is commonly associated with scleroderma although the two aren’t exclusive to one another; Raynaud’s can be present with other conditions.  Most commonly affecting the extremities of the body(…)